Managing my day begins the night before

It begins with a list.

A “Lisa List”

Before I go to bed, I reorganize the thoughts I had during the day (usually scattered on many sheets of paper) of what needs to be done onto one sheet (or successive sheets) of paper.

Like today, my to-do list consists of:

  1. WALK!
  2. Put my bathroom towel in cat carrier
  3. Cat carrier in living room
  4. Load videos (szr/slideshows) to iCloud
  5. Burn Bk2 for dad
  6. Catch Goose for vet
  7. Goose to vet 2pm (DO NOT LET THEM LECTURE ME)
  8. SLIDESHOW to Hamilton?

– “Eye of the Hurricane”

– “Say No To This”: Superimposed over my szr video

Write Blog post


Now I’ll explain it to you
:

  1. Obvious, except it is COLD outside, upper 30s
  2. I put my used towel in the cat carrier so it smells like me
  3. It’s not a fair fight if he doesn’t see it coming
  4. A friend of mine who educates people with his szr videos had his YouTube hacked. I don’t have my videos backed up.
  5. Dad loaned out our Harry Potter: Chamber of Secrets. I found it on an old computer yesterday. It’s up in rotation again. He listens to the CDs as he drives(5+years in rotation) as I have when I sleep (nearly 10 years! Since July 2006 #NonStop)
  6. My cat’s name is Goose
  7. I stopped giving Goose 1ml insulin for diabetes because he started hiding under the bed. I’m controlling with diet.
  8. I know HamiltonMusical by heart because it is my exercise music.

– “Eye of the Hurricane”: I compare to my climbing out of disability
– “Say No To This”: is a Grand Mal Seizure, I’m going to check if it will fit over my szr video on YouTube. I’m szrgirl.

I started the day backwards.

—-> also, after I wrote this I sat and stared at the walls for an hour or so. I had laid down on the loveseat, our “couch”, something I never do. I opened my eyes to see dad drinking his morning coffee in his computer chair.  I closed my eyes again.   I forgot what I was doing. I forgot I even wrote this, privately published.  I went back in here, deleted a photo of Goose placed in the wrong spot. I got dressed for walking (mostly). Now I will place Goose in a better spot and walk. It’s time to start my day!

 *Please forgive the ragged formatting*

Flight of thought

 

Imagine how you feel after 2 beer (or more, if it takes more for you to feel “slightly more than buzzed”).

Imagine that feeling is with you All.The.Time.  You can’t turn it off or shake it.

That’s the world I live in.

– A thought strikes me:

  • I’m sitting in bed,
  • I’m at the coffeepot,
  • I’m just walking around.

– If I don’t write it down THAT INSTANT it’s gone FOREVER, never to return…

– IF I remember it later:

  • I don’t recall the details,
  • My mind goes off on a tangent,
  • I don’t do well in distraction environments.

This is why I talk #NonStop!

This is why I resemble the phrase in HamiltonMusical, “Talk Less, Smile More”

  •      Not only is my ACTUAL last name Hamilton, but the injury to my Right             Temporal Lobe causes me to talk CONSTANTLY!

(I’m awaiting permission for the image I wish to use.  I refuse to use images without the express permission of the creator — if known.)

The importance of safety

It is critical to respect the realities of having a TBI and epilepsy.  Anything can and may happen.  I ordered a Medic Alert bracelet in German to wear alongside my English bracelet while I tour Europe.  My German friend of 30 years assisted me with the translation.  Though many people are fluent in English, I cannot depend upon that being the case if I have an emergency while traveling alone.  I am alone, most often, in Germany, the Netherlands, and England.  England, there is no trouble.  The Netherlands, most people speak two or three languages.  If they do not speak English, they may speak German.  Germany is the sticker.  For the most part I am traveling alone in moderate to small towns.  

I have an ungrounded wire in my neck still attached to my vagus nerve from a Vagus Nerve Stimulator (VNS) removed in July 2007.  It didn’t work for me.  I was one of the 3% it made my seizures worse.  I can have only one very specific type of MRI without damaging the nerve.  The leads attaching the wire to the nerve become part of the nerve by growing into it.  As mine was implanted in March 2005, it is a permanent part of me now.  We removed the battery in July 2007, as I mentioned.  The battery did not need to remain.  It was a bulky, uncomfortable, pacemaker-device under my collarbone.  Every time I tried to sleep on my left side it would attempt to leap out of my chest.  I can have any scan or ex-ray, just not an MRI.  That will heat the wire and damage the nerve.  It is critical I not receive the wrong type.  So critical, I purchased two bracelets for my #SurvivalDay20 trip.  I don’t fool around with safety in these matters.  It is too important.  I have come too far to risk anything so easy to remedy by a simple preventive measure.

 

Well, whoever you are, here we go!

First post.  What to say?  I honestly don’t have a clue.  I’m also writing in the WordPress app – I guess I’ve never used WordPress in any sense so it doesn’t matter what I say.  I’ll add an image to show my progress from walking.  I started walking December 8th when I received collapsable walking sticks from Amazon.  With my visual vertigo I wasn’t sure how successful my walking idea would be, but it’s gone amazingly well!  The Walgreens Activity Tracker I bought to play with initially was a good investment.  It got me moving.  

On January 18th I upgraded to a Fitbit, which told me how to modify what I eat to lose weight!  I eat 1,000 calories less than I use and keep my nutrition levels as close to optimum as possible using MyFitnessPal (a program I was already using with the Walgreens Activity Tracker).  So now, I’ve gone from being a person who can never lose weight “because of my seizure medication” to understanding WHY I’ve never lost weight.  The pounds are melting off me!  I’ve lost 12lbs! I’m under 200lbs for the first time in maybe a year!  I’m at 189!  I set my “goal weight” at 150.  In the photo, the left is New Year’s Eve, 2015/2016.  The right is Jan 23, 2016.